Spinal Muscular Atrophy Life Expectancy

Jesy Nelson, Spinal Muscular Atrophy

Spinal Muscular Atrophy: Symptoms to life expectancy after Jesy Nelson's heartbreaking news

Jesy Nelson has shared the devastating news her twin girls have been diagnosed with a life-changing and rare genetic condition which means they may never walk.

· 5h

Jesy Nelson Reveals Twins' Rare Diagnosis—What Parents Need To Know About Spinal Muscular Atrophy

E! Online · 3d

Jesy Nelson Shares Twin Daughters Will “Probably Never" Walk After Spinal Muscular Atrophy Diagnosis

· 1d

Jesy Nelson ‘right to challenge’ twins’ diagnosis process, says Streeting

The Health Secretary has said Jesy Nelson was “right” to challenge the screening process for spinal muscular atrophy (SMA) after her twins were diagnosed with the rare genetic condition.

· 12h

Jesy Nelson will 'shout from the rooftops' about baby muscle disease campaign

· 20h

Jesy Nelson shares update from hospital as she reveals she is fighting for SMA1 screening at birth after her twins' diagnosis because early treatment helps to prevent severe muscular disease

· 6h

Jesy Nelson Says She Noticed “Signs” Before Her Twins’ SMA Diagnosis

“I actually saw all of the signs before I knew what SMA was,” Jesy, 34, said during her Jan. 6 appearance on UK's This Morning.

· 11h

Jesy Nelson shares first warning signs she noticed that her babies may never walk

· 12h

Watch: Jesy Nelson breaks down over 'frustrating' reality of twin babies' life-changing SMA diagnosis

1don MSN

Jesy Nelson's Twins: All About the Little Mix Alum's Daughters Ocean and Story

In May 2025, the Little Mix alum welcomed daughters Ocean Jade and Story Monroe with musician Zion Foster, who she announced her engagement to that September. They were born prematurely at nearly 31 weeks and remained in the neonatal intensive care unit (NICU) for several weeks, having experienced a slew of health issues even before they were born.

The Independent on MSN

What is spinal muscular atrophy?

Spinal muscular atrophy explained after Jesy Nelson reveals her twins’ diagnosis - The singer shared an emotional update about her twins’ health on Sunday and that ‘time is of the essence with this di

ABC30 Action News

Fresno child battles rare form of Spinal Muscular Atrophy

FRESNO Calif. (KFSN) -- The living room of Zaira De La Cruz's home has been turned into a makeshift hospital room. About seven months after her daughter was born, Zoey was diagnosed with the James type of Spinal Muscular Atrophy -- rare and severe ...